I’m pretty good in my own company. I need plenty of time alone doing quiet, reflective activities and this has been a key part of my self-care as I have been recovering from illness over the last few weeks, gently gathering my strength and energy in the peaceful surroundings of my home. I recognise the importance of this for me, but I also think it’s vital to feel part of my community. We all need a sense of belonging, of sharing and of company.Read More
I can’t remember a time when I wasn’t creating something; music, cards, sewing, crochet, knitting, writing, colouring and drawing, it doesn’t really matter what it is, it’s the process I love. When I make something, I feel inspired, absorbed, hopeful and accomplished. I often think that as long as I have a creative outlet, I am okay.Read More
My home features on my ‘treasure of pleasure’ list most days and I feel particularly grateful to have my garden. Private and secluded by a mini woodland, it is my peaceful oasis. With labyrinthitis, I didn’t go beyond my garden gate for over three weeks, but I was able to sit outside in my wheelchair, listening to the birds, feeling the breeze and breathing in the fresh air. Even during my days in bed, I found myself gazing through my large bedroom window, getting lost in the soothing greenery and being entertained by plenty of visiting wildlife.
Connecting with nature is beneficial both physiologically and psychologically. Even if it is only looking through a window or having a plant in your room, it is known to have a positive effect. I find it incredibly grounding and it helps me feel part of a larger whole. It is a living, breathing meditation and I try to experience it in some way every day, often with the help of Bertie and Bella, who of course rarely leave my side when I am unwell.
‘A Tickle of Whiskers and a Nudge of a Paw’ – a post about the health benefits of time with animals, and my feline protectors, Bertie and Bella.
‘Autumn’ – a post on nature, mindfulness and changing seasons.
‘Walking Meditation’ – a post about meditating while out and about, whether walking on legs or rolling on wheels.
A Week of Self-Care – Day 1 – The Call to Self-Soothe
A Week of Self-Care – Day 2 – Meditation
When subjected to bedrest, the body loses muscle mass at around 12% a week. Of course, it’s sometimes necessary to rest in bed when you’re unwell, and it’s what I needed during the most acute phase of my labyrinthitis, but that knowledge was a motivator to move. Not only that, but movement is vital to maintain healthy neural pathways to help my FND, and it is also as a key component of my pain management. Added to that, I knew that for my vestibular system (balance) to recover, it needed to be challenged. In other words, I had to move!
I have a range of movement practices I incorporate in my day, suitable for times ranging from when I have minimal automatic movement to those when my movement is at it’s strongest and most fluid. Even if my body is in a state of paralysis, it is still moving with the breath. That’s always my starting point, followed by mindful movement; a moving meditation that helps me regain body awareness. I then tap into my neurophysio techniques, working on my sit to stand as the basis for functional movement, and weight shifting side to side to generate some rhythm and momentum. My yoga practice ripples throughout it all. During the past few weeks I have practised yoga in bed, in my wheelchair, and I am this week starting to get back down on my mat. I am taking it incredibly gently, constantly tuning into my body and adapting what I do to meet my needs. To get some movement going feels liberating. My body feels alive as I sense energy coursing through my cells. I feel more present and I’m gradually regaining strength.
‘Adaptive Yoga Poses’ – In this toolbox you can find a month’s worth of adaptive yoga poses I completed in 2016 for the Mind Body Solution’s ‘Kiss My Asana’ Yogathon.
‘FND Movement Toolbox’ – A chart sharing some of the neurophysiotherapy techniques I use.
You can find an introduction on mindful movement by Breathworks, followed by a series of guided movements on Soundcloud.
A Week of Self-Care – Day 1 – The Call to Self-Soothe
‘Let food be thy medicine and medicine be thy food.’ I think Hippocrates got it right over 2000 years ago. It’s the underlying principle I follow and I am a firm believer that food can either fuel health or feed disease.
I’ve always been one for little often, a ‘grazer’ as I remember my Paediatrician once commenting. When I’m particularly unwell, my digestive system shuts down as energy is diverted elsewhere and I quickly lose weight. I turn to mini meals that are as nutrient dense as possible.Read More
Meditation is at the heart of my self-care. It brings me peace and stillness, whatever turbulence may be happening outside or within. It grounds and settles me. It is key to my symptom management. It enables me to tune into my needs and it informs all other aspects of my self-care routine.Read More
Three weeks ago I woke up, went to get out of bed and veered violently to the right. With FND, my body can make some interesting moves, but this was a new one. I was unable to sit up or even transfer into my wheelchair. I had completely lost my sense of balance, my head hurt, I felt sick and I was utterly exhausted. My GP came out and diagnosed viral labyrinthitis, an inner ear infection. She prescribed medication to help with the acute phase and warned me that the illness was unlikely to mix well with my FND.Read More